Our precious girl is now 11 months old... What a wild ride! Each month has its own battles and anxieties and we are still finding out feet on how to manage it all. Ashana has multiple specialists she sees weekly which means she has a different appointment daily.. She is delayed in her motor skills, she cannot sit unassisted, cannot crawl or walk like kids her age. She has hypertonia - Hypertonia: Increased tightness of muscle tone and reduced capacity of the muscle to stretch caused by damage to the motor nerve pathways in the central nervous system. Untreated hypertonia can lead to loss of function and deformity.
Ashana also has Hypermobility - Hypermobility syndrome is a condition that features joints that easily move beyond the normal range expected for that particular joint. She has learnt to hold her balance to be able to sit for a few seconds, roll over onto her belly, shuffle around in her walker and say dada.. Her progress is slow, but she is kicking goals... She is so social and beautiful. Each day we do hours of therapy to help strengthen her upper body, along with Occupational Therapy, N.O.T Therapy & Osteopathy multiple times a week.. I quite often say 'I never imagined i would be on this journey' but who ever does? We had no warning, nothing to give us the heads up and were thrown straight into the deep end. But when something like this happens in your life you learn so much about life and about yourself. When I was pregnant with Ashana I knew she was different, I knew she was going to change my world but I didn't realise just how much. The journey is hard, we have our good and bad days as everyone does. Some people feel sorry for us but i feel like the luckiest mum in the world. She may never get to walk or talk but she is the strongest most resilient, happy, bubbly little angel who lets me know in her own little way what she wants and every morning gives a good morning kiss...
To us she is absolute perfection. xx