Ashanas Journey

Raising awareness and sharing the journey of a young beautiful girl diagnosed with STXBP1 & Alexander Disease

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Juanita Simpson

Nov 7, 2019
2 min

Special needs parenting

Special needs parenting changes us entirely. There is no denying that. Because the truth is -- the first few years pull you so far away from who you used to ...

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Juanita Simpson

Oct 3, 2019
2 min

Welcome to Holland

I will never forget the day Ashana was diagnosed with STXBP1 & AXD....like almost every special needs parent I know- all I can remember thinking that day was...

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Juanita Simpson

Sep 8, 2019
3 min

We made it to 1!

WOW! Well, here we are.. 1 year earth side.. Soooooo many emotions from one extreme to another and celebrations too these past few weeks! On multiple occasio...

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Juanita Simpson

Aug 14, 2019
1 min

The Gold Coast Colour Run! - Team Ashy

This year my closes girlfriends and I took part in the Gold Coast Colour Run.. The charity we were fundraising for was the Starlight Foundation. This is som...

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Juanita Simpson

Aug 14, 2019
3 min

Ashanas Story

Ashana was our beautiful surprise - who keeps on surprising. She is the youngest with two older brothers Chad & Deegan. She was born a perfectly healthy bub,...

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Juanita Simpson

Aug 14, 2019
2 min

The First 6 months

Hospitals, lack of sleep, the battle that seems never ending.. Those are the words used to describe these months. Multiple hospital admissions for various re...

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Juanita Simpson

Aug 14, 2019
2 min

6 months+

Our precious girl is now 11 months old... What a wild ride! Each month has its own battles and anxieties and we are still finding out feet on how to manage i...

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PO Box 782 Burleigh Heads 4220

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