Welcome to Holland
I will never forget the day Ashana was diagnosed with STXBP1 & AXD....like almost every special needs parent I know- all I can remember...
Ashanas Journey
Raising awareness and sharing the journey of a young beautiful girl diagnosed with STXBP1 & Alexander Disease
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We made it to 1!
WOW! Well, here we are.. 1 year earth side.. Soooooo many emotions from one extreme to another and celebrations too these past few weeks!...
The Gold Coast Colour Run! - Team Ashy
This year my closes girlfriends and I took part in the Gold Coast Colour Run.. The charity we were fundraising for was the Starlight...
Ashanas Story
Ashana was our beautiful surprise - who keeps on surprising. She is the youngest with two older brothers Chad & Deegan. She was born a...
The First 6 months
Hospitals, lack of sleep, the battle that seems never ending.. Those are the words used to describe these months. Multiple hospital...
6 months+
Our precious girl is now 11 months old... What a wild ride! Each month has its own battles and anxieties and we are still finding out...
