Ashanas Journey

I will never forget the day Ashana was diagnosed with STXBP1 & AXD....like almost every special needs parent I know- all I can remember...

WOW! Well, here we are.. 1 year earth side.. Soooooo many emotions from one extreme to another and celebrations too these past few weeks!...

This year my closes girlfriends and I took part in the Gold Coast Colour Run.. The charity we were fundraising for was the Starlight...

Ashana was our beautiful surprise - who keeps on surprising. She is the youngest with two older brothers Chad & Deegan. She was born a...

Hospitals, lack of sleep, the battle that seems never ending.. Those are the words used to describe these months. Multiple hospital...

Our precious girl is now 11 months old... What a wild ride! Each month has its own battles and anxieties and we are still finding out...